Whirlwind

Today has been just that -- a whirlwind.

The nurses woke John twice last night to draw blood -- both times from his foot. I didn't even know that was possible, but apparently it is! He was obviously not a happy little dude. The results from that showed in his favor, though! His white blood count was down to 13k, and his sed rate was also starting to drop a little (I don't know the numbers for his sed rate). The antibiotics are apparently helping fight whatever infection he has going on in there right now. He's still in a ton of pain and is resting well with his morphine.

John had another very busy day today. Doctors have been in and out all day, and so have we! He was limited to just clear liquids starting at 9am, but he was sleeping then so he hasn't had anything since 8am. At 10am he was given an injection (into his IV) that would show certain things on the bone scan he had to have at noon. For the bone scan, he had to be sedated. He did wake up and fight a bit at one point, but they just gave him a little more meds and he was right back out.

While he was sedated they figured they'd just go ahead and do the spinal tap on him since he would need one anyone to rule out a few other big diseases and infections. It was very sad to watch them pick him up and lift him from one table to the next while he was completely limp. I had to leave the room during the spinal tap -- there was no way I could watch that, and since he was completely sedated I was okay with leaving.

After the spinal tap we headed back up to our room. We weren't up there very long before an ENT came to take a look at John. He said that John's left ear is infected, and one of the CT scans he had showed there was fluid in John's middle ear (behind the ear drum) as well as in the bone by the ear. They weren't sure if there was infection or not, so they wanted to go in and drain the fluid from the inner ear and possibly put a tube in; and he said there was a good possibility it would happen today (mind you it was already like 2pm).

Right as the ENT was leaving, the rheumatologist team came in. The doctors all went back out into the hallway to discuss things and make sure they were on the same page. When they came back in, they told me that John would indeed be having his left ear drained and a tube inserted, and he was also going to be having an MRI tonight. The MRI would be of his head, neck, and full spinal chord. I asked if they'd be doing his knees as well, and she said there wouldn't be enough time tonight, but that he will most likely have one before we leave. The rheumatologist explained that John's spinal tap came back irregular -- his white blood count in the fluid was like 20x's higher than normal (hence the MRI of head, neck, and spine).

The doctors were able to coordinate everything to where John was taken down to the ENT, put under for the draining and tubes in his ear, sent to recovery for just a few minutes, and then sent straight over to MRI and put back under before he was even fully awake and aware. His MRI will last close to four hours, and then there will be recovery time, etc. afterwards. I'm waiting for him now in our room, and when they're done they are going to call the nurse's station here and have someone take me to wherever he is (they aren't sure which recovery area he'll end up in).

All we can do at this point is wait for the test results and go from there. The doctors are talking about testing his bone marrow, but they are putting that off for the very last thing only to do if we have to. Their goal right now is to obviously figure out what's caused his symptoms, treat it until it goes away, and find a way to manage his pain (obviously without morphine so we can go home). The doctors are excellent and are all working together. They're very concerned for John and are trying very hard to figure things out. Many times I've been told "He has this symptom, but he's not following it by the book," so it's very difficult for them to put everything together. They're still trying to figure out if everything started with his arthritis, if there's something else coupled with the arthritis, or if there's something bigger all together.

I'll keep everyone updated as best I can. Thanks again for all the prayers and thoughts.